has anyone else had breathing problems

[Liz2468]

hi before Xmas I ended up in hospital with pneumonia I don’t remember as I was so iLL and wasn’t conscious the doctor wanted to see my partner and told him that I had too much carbon monoxide in my body so I had a mask on with two tubes one taking the carbon monoxide out of my body and the other tube was putting oxygen in my body but the doctor told my partner that if I didn’t come round he would need to move me to high dependency and put me in a seduce coma but thankfully I did come round but since then I’ve been in and out in hospital due to my breathing but now I’ve been put on NUCALA injection every four weeks as I have severe eosinophilic asthma I would like to know if anyone else has severe eosinophilic asthma because to tell you the truth I’m scared because my breathing is terrible and my doctor said I had stridor I hope you can help me

[Djlr]

About 5 yrs ago I was diagnosed with STRIDOR (more of a childhood illness).

They wanted to do surgery & I put it off for about a year - not believing it was necessary 🥴🙃

I also went to the PULMONOLOGIST to make sure it wasn’t ASTHMATIC RELATED.

I got so that any WALK, if a SLIGHT INCLINE, was leaving me “out of Breath”. When I was on the phone, I started noticing that I was “sucking” in AIR to get a sentence out ……

The Pulmonologist said my BREATHING inflow of AIR was more of a Square SHAPE - it definitely wasn’t Asthma related & he said to go back to “ENT DR” to discuss next step, SURGERY.

I did have LARNYX SURGERY & my LARNYX was 75% CLOSED OFF (STRIDOR) & the SURGEON said it was one of the WORSE CASES to OPEN the Larnyx back to normal - it took 2 Balloon expansion during the Surgery. IT is very RARE.

HUGE DIFFERENCE- I “could breathe” again and the STRIDOR hasn’t come back - which the Surgeon said was likely to happen 🥴.

Lupus / AUTOIMMUNE DISEASES do affect the LARNYX (joint).

journals.sagepub.com/doi/10...

ncbi.nlm.nih.gov/pmc/articl...

pubmed.ncbi.nlm.nih.gov/179...

verywellhealth.com/cricoary...

[michaellasmith Administrator]

Hi Liz2468,

I'm sorry you have had such a terrible time with your breathing, but glad to hear you are receiving treatment.

I can see from previous posts that you have already seen our 'LUPUS the heart and lungs' publication, however I have attached below a link to the Asthma and Lung UK charity webpage that you might find useful.

asthmaandlung.org.uk/condit...

You may have also received our details before, however if you need to chat, the number for our helpline is 01708 731251 and they are open from 9am until 5pm, Monday to Friday.

Warmest regards,

Michaella