New study investigating how young people experience rheumatic pain

[Debbie_kinsey]

A new study is looking for young people aged 5-19 with chronic musculoskeletal conditions to share their experiences of chronic pain, and they’re keen to hear from young people with lupus. You can find more information on our website here: lupusuk.org.uk/study-invest...

[Hidden]

I’m 61 but diagnosed aged 17 with Stills, I remember the pain vividly prior to medication and treatment. Having had two natural childbirths without pain relief I can say after all these years that delivery hurt less than the early stages of Stills prior to diagnosis and meds. I’m Too old to help but you could pass this on.

[Debbie_kinsey Administrator LUPUS UK in reply to Hidden]

Hi

Unfortunately because of the way the study works they wouldn't be able to include the information you've shared. But hopefully they work they are doing will add to the evidence about experiences of pain for younger people with these kinds of illnesses and lead to better treatments.

Take care

Debbie