Concerned from Canada : Hi All, Hope it's okay to... - LUPUS UK

LUPUS UK

32,062 members28,384 posts

Concerned from Canada

Soph_Locs profile image
1 Reply

Hi All,

Hope it's okay to post here as I've yet to find a community of this type in Canada.

I've struggled with chronic nausea and vomiting since I was a kid. As a teenager I started having significant joint pain in the hips and shoulders and always have struggled with dry and rashy skin. I've always been very cold intolerant and was diagnosed last week with Raynaud's after randomly loosing all feeling and colour in my fingers and toes with bad pins and needles pain once feeling came back.

My GP ordered labs which came back with CRP of 7.5 (I've been using cannabis heavily for years), ANA negative, but hemoglobin and WBCs in urine. I've been exploring the possibility of having lupus, and really focused on my skin for the first time. I have what I believe to be a malar rash, and in photos from the summer it's much more noticeable.

I've been referred to a rheumatologist, but it will be a long wait, so in the meantime I'd love to hear from others and see if my story rings true with anyone else. TIA!

*Photo is from this morning. The rash seems to be getting more noticeable as my feelings of fatigue and joint pain increase.

Written by
Soph_Locs profile image
Soph_Locs
To view profiles and participate in discussions please or .
1 Reply
LuluM25 profile image
LuluM25

Hi Soph, welcome to the forum. See all the replies to Danimccrea as they’re all to do with the lupus face rash. Hope they answer some of your queries. Best wishes to you.

Not what you're looking for?

You may also like...

does anyone know where to find a flexible job suitable for people with SLE?

Hello everyone, I hope you all are doing good during this days, I wanted to ask if any of you...

Feelings of disappointment

With having Lupus and a few other conditions, being on steroids and suffering from anxiety and...

Colonoscopy update and thanks

Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep -...

Sun protection. Mineral sun lotion on a budget

Staying protected from UV rays is high on many peoples list this week, with layering and staying...

Opthamology appointment re Hydroxychloroquine

Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m...