Help for my daughter: Hi all, I would love your... - LUPUS UK

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Help for my daughter

Aurali profile image
Aurali
β€’11 Replies

Hi all,

I would love your help with my daughter. She is 32, gets very tired, aching joints, has rash on her face & chest and gets very dry eyes.

I have SLE and so does my niece.

I have added a photo of her face.

Many thanks 😊

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Aurali profile image
Aurali
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11 Replies
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Roarah profile image
Roarah

The best help would come from her gp ordering blood panels with referral to dermatology and rheumatologist if deemed significant.

Aurali profile image
Aurali in reply to Roarah

Thank you 😊

jimbo1605 profile image
jimbo1605

I can only echo what Roarah has said but to add :

Ask the GP for a broad range of bloods : FBC, lipids, liver, kidney, bone profile as well as CRP, ESR and auto immune antibodies ANA and DSDNA + others if possible.

There are many causes to the symptoms you have mentioned so try and rule out conditions at the early stage as well as ruling in.

I suggest a quick look at the BCR lupus criteria would help as well.

My best wishes and thoughts are with you and your daughter.

Aurali profile image
Aurali in reply to jimbo1605

Thank you so much, we will get in touch with her gp, I will update 😊

sarahalice profile image
sarahalice

Unfortunately from what you have said and from her rash, it sounds autoimmune related. It's best she gets to the gp and demands bloods. It can be a long process.Wishing her and yourself the best x

Aurali profile image
Aurali in reply to sarahalice

Thank you so much, we will get in touch with her gp, I will update 😊

Chris21 profile image
Chris21

Hi Aurali, you mentioned you have SLE so you probably already have an idea what it may be and just need to persuade her to go get checked out with the GP. I have SLE with an occasional mild rash but my daughter who has sjogrens tends to get a rash more often and vivid similar to the photo you’ve sent. Hope she gets some answers soon. X

Aurali profile image
Aurali in reply to Chris21

Thank you so much, we will get in touch with her gp, I will update 😊

Aurali profile image
Aurali

Thank you so much, we will get in touch with her gp, I will update 😊

I have sjorgrens and get dry itchy eyes I now have Evolve eyedrops which GP prescribed which have helped

Aurali profile image
Aurali in reply to

Thank you, yes she does use eye drops, we will get in touch with our gp 😊

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