A moderately interesting article on Long Covid as... - LUPUS UK

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A moderately interesting article on Long Covid as compared to other long-term illnesses

Choccy8 profile image
4 Replies

vox.com/22298751/long-term-...

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Choccy8 profile image
Choccy8
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4 Replies
KayHimm profile image
KayHimm

Great article. So many interesting points that it is hard to process it all. For the first time I felt almost lucky to have been diagnosed with autoimmune disease after a year and a half and to have had positive Covid antibodies to go with the inflammation in my l lungs after Covid.

It is so hard for anyone to suffer with « unexplained » symptoms. And it isn’t rare.

PMRpro profile image
PMRpro

“it’s time for medicine to be rooted in just believing the patient,”

Well wouldn't THAT be a refreshing turn up for the books!!

I can't remember when the first "long Covid" talk started - my immediate reaction was "And? Welcome to our world of a/i illness ..."

Choccy8 profile image
Choccy8 in reply to PMRpro

It would indeedy! This quote jumped out at me: 'Their unexplainable symptoms can elicit skepticism in health professionals, [...] who are trained to consider patient feedback the “lowest form of evidence on [the evidence hierarchy], even under research on mice.' Sounds familiar...

We can only *hope* that all the publicity/research around long covid will have positive affects on other conditions, though it seems from reading this that some doctors still have their heads in the sand and their fingers in their ears!

Pumpkin2009 profile image
Pumpkin2009

Thank you for a really good article. Having Covid in the beginning of November with lingering symptoms is very difficult for doctors and me as well. Although I am sure that many of my lingering symptoms are Covid like constant choking sinus drainage, diarrhea, lack of taste, etc., My doctors seem to have trouble thinking it is still Covid related and how can they determine what is lupus and other conditions I have. It is almost like they are afraid to actually admit what Covid can do long term.

It puts me and others in a really isolated place. I never left my home, but my husband got it and recovered. I got it and am still struggling.

Thanks again for the article.

Healing hugs.

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