Years and years, of chasing better testing. Have had dry eyes since the 80’s ( around time thyroid started showing issues) and dry mouth now for more years than can remember. Almost constantly now, could grate steel on. my tongue at at any point overnight!
This week I got a ‘weak positive’ test to an Autoimmunity profile. Yeh! It struck me as weird, that, like when eventually diagnosed with hypothyroidism (after a decade or more of being fobbed off), I was initially so chuffed to get this. No wonder our doctors think we are mad! Who would be so glad to get a positive result, a diagnosis of a life long condition, (whatever it turns out to be?)
The ‘joy’ comes from the long awaited vindication. Something I have known for so long, and which has been dismissed as ‘anxiety’, ‘depression’, ‘attention seeking’ , whatever, has ,at last, been acknowledged.
The joy comes from the possibility that maybe now something can be done, and maybe, just maybe the GPs will start being a bit more understanding and less assuming and judgemental.
I have a first referral appointment at a Lupus clinic this coming week. So this positive reading is very timely. Fingers crossed now that the appointment goes ahead, in this C19 climate!
Opthamology appointment re Hydroxychloroquine 
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Lupus and Radiotherapy
