Soft tissue issues : Knee, shoulder & hip all... - LUPUS UK

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Soft tissue issues

Sheole profile image
6 Replies

Knee, shoulder & hip all painful. X-rays show all is same. Thinking soft tissue inflammation. Can’t take antiinflammatories due to kidney issues. Any ideas for help with pain & or mobility. Tia.

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Sheole profile image
Sheole
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6 Replies
Serser profile image
Serser

Hi sheole,

I’ve had some pain relief from using a tens machine in the past.

I have also used ice to reduce inflammation, and heat to soothe.

The power of resting shouldn’t be underestimated either - but if you are anything g like me that’s easier said than done!! I try to go for a gentle, flat, regular surface walk once a day once I’m feeling like I can cope with it-just to keep myself going!! I think it helps with the endorphins also which help mood and also pain.

When you ache, if you have family let them do the rushing and running around-don’t be a hero, it’ll just put you out of service even longer! As you can imagine my kids and hubby dread it when I ache!!!

I have come across individuals that have felt the benefit from acupuncture, so they might be worth looking into?

I know that you probably aren’t in the right place at the moment but I find that distraction therapy also help me-my passion is art and I can get so engrossed in it that I almost don’t feel the pain- I know that sounds weird but it’s true!

I think others get similar relief from their passions be it art, music, exercise, meditation, mindfulness etc. I think in needs to be something you are interested in though for it to work.

I take some supplements to help minimise joint pain on a daily basis-I’m not sure if these work but at least it feels as if I’m trying to be proactive!

I’d talk to your gp about any other pain relief options also. There are a group of medication that work on nerves eg amitriptyline that you may be able to have-I don’t know got certain if you can but it’s worth an ask! When you visit go you could ask about supplements, tens, acupuncture etc as possible other ideas just to be on the safe side.

Sheole profile image
Sheole in reply to Serser

Thanks for your response. Lots of good ideas and tips. It is like I just got pacing myself down and now I’ve got to adjust. Things are always changing but that can be a good thing. I’m going to refer to your post lots. Have a good day.

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Sheole,

I am sorry to hear that you are experiencing a lot of pain at the moment.

Have you read our blog article on 'pain management'? The article discusses non-prescriptions methods of managing pain better: lupusuk.org.uk/pain-managem...

Please keep us updated, wishing you all the best.

Sheole profile image
Sheole in reply to Chanpreet_Walia

Thanks for your response. Will check it out. Yes pain is an issue especially at night. Have a good day!

pixie24 profile image
pixie24

Hi I swim and find this helps. But if you can't swim find a way of exercising that suits who. First of all you may find you ache more but in time will feel better. I am sure you doctor will give you the best advice as I do not know how mobile you are. Good luck

Cas70 profile image
Cas70

Hi - there is a topical gel or spray called Deep Freeze (bliss in this heatwave) I also use Olbas Oil - rub in circular motion around painful area. Turmeric I have taken for years - small dose every day (check with Doc) soon builds up as it is a natural anti inflammatory. I take a Co coda-mol (not anti inflammatory) if pain is bad then put on one of the gels and REST until you feel it all begin to work - and it will at least ease it off to a bearable level.

Good luck

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