Hey everyone

[amberbz]

Hi, I have not been diagnosed with anything at the moment. I have been doing research as well as reading what you have all written. I really feel as though it is lupus or somthing close to it. In the past 4 to 5 yrs I have had a lot of things change health wise. I now have rosacea, migraines, allergies of smoke and many other environmental that I have never experienced before, my joints are painful but not usually swollen. I have such a horrible memory can't remember why I go in a room or how to get to some where I have driven to a hundred times.

I did have blood work done from my gp my ANA was 1:80 sed rate 35 and I have inflammtory

[Hidden]

What has your gp suggested since. Many people have a raised ANA and inflammatory markers can change for many reasons. The trouble is so many conditions have such a wide range of symptoms that come and go, its just pinning down which is the cause. If your symptoms persists I would pursue this with your gp.

[amberbz in reply to Hidden]

Thank you for your response. He does not say anything. Just thinks everything is separate. My ana is neg and that the higher markers maybe u Judy hat a bug at three moment. I think it's s bigger picture. I know I need to advocate more u just don't know where to go. And to advocate more is going to be expensive especially like everyone says it s yrs sometimes for a diagnosis.

[Hidden in reply to amberbz]

The trouble is the gp is stuck within NICE guidelines for referrals. Therefore they need to do certain tests and the certain symptoms prior to referrals or the referrals may be rejected. You can ask for a second opinion from another gp in the practice. I would advise writing down your symptoms with dates, take pictures of rashes etc try to keep a history of reactions to things. The better the history you can present the better.

[Chanpreet_Walia LUPUS UK]

Hi amberbz,

Skin involvement, headaches and joints/muscle aches and pains are all symptoms commonly associated with lupus. To find out what other symptoms are associated with lupus, you can download or request our free information pack here: lupusuk.org.uk/request-info...

Difficulty in articulating thoughts and memory impairment are common symptoms that are associated with lupus; it is referred to as ‘brain fog’ or ‘lupus fog’ by people with lupus. Stress, anxiety and fatigue are a few examples of the causes of brain fog, you can find out more about this in our blog article ‘Coping with Brain Fog’: lupusuk.org.uk/coping-with-...

We are not medically trained here therefore we cannot comment on your blood test results.

Around 5% of people with lupus have a ‘negative’ ANA test result.

An ANA test gives an indication on whether a person may or may not have an autoimmune condition. It does not provide sufficient evidence to confirm a diagnosis of lupus. Further testing would be required to accurately identify the cause of your symptoms. To find out what specific tests and criteria are needed in order to make a diagnosis of lupus, click here: lupusuk.org.uk/getting-diag...

It is important to bear in mind that lupus presents differently in everyone therefore it is rare for two people to share the exact same experience.