Sphincter of oddi dysfunction?

[blondie120]

Anyone else have this ? Ive had my gallbladder removed which is a factor but could any other probs like ra be a cause ?

[zzcat]

Hello Blondie

Yes, I was diagnosed with this quite a few years ago and had an apt with who my doctors said was the leading expert here in the US. A doctor Peter Cotton, somewhere in the Carolinas I believe. I can look him up if you are interested. But before I could keep the apt, they found other things they wanted to try first and I was lucky and all has calmed down for now.

It stays in the back of my mind I may one day again face this issue. I don't know what symptoms you have but this is not an easy diagnosis from what I was told.

Yes, I have RA, also Lupus and anti phospholipid, as well as vasculitis

As with many of these issues, we may never have an answer but please let me know anything you learn and how you are doing

Susan

[blondie120 in reply to zzcat]

Thanks Susan , glad im not alone xx

[zzcat in reply to blondie120]

No, you are not. Sometimes I have just gotten that knowledge from this site and it has been enough to allow me to either let an issue go and move on or understand that I have an issue to dig into. It has helped me choose my battles.

Knowing this can indeed be part of your autoimmune issue can perhaps give you that at least.

Good luck!

[Loopydroopy]

Yes I was diagnosed about 9 years ago. Found a gastroenterologist to do ERCP and it caused me to have pancreatitis. I was in the hospital for about 3 weeks and almost died. I still to this day have pancreas problems. But all that said I would not have been able to wait on the treatment because the pain from the sphincter of oddi was sending me to the emergency room. I was all most passing out from the pain and it would have only gotten worse in my case.

[blondie120]

Yes i had to go a+e, im off work because of it , stomach is sore everytime i eat, so i ate once aday but i was doing a late shift having eaten in morning and the pain was so extreme i had to stop In mid shift , it came in waves felt like burning acid was melting my insides , the bloating is awful i look 9 months pregnant, and explosive visits to loo , nightmare really, ive read about ercp it is a worry but i cant eat and work , have to see what hosp says , thanks for your input hope you have only good days from now on x