Seeking a Patient Representative for a Guideline Development Group

Hi everyone,

The British Association of Dermatologists (BAD) is putting together a guideline development group (GDG) to produce a new guideline on the management of cutaneous lupus erythematosus, based on evidence that has been published.

They are seeking a person with predominantly cutaneous lupus to join their guideline development group as a patient representative.

You would be involved in providing feedbacks on specific areas such as:

a.What are the results of your treatment(s) that are most important to you?

b.Could you put these treatment results in order of importance?

c.If we presented a summary of the evidence comparing treatments A, B, C, D, would you choose the same treatment based on your own experience, or would there be differences in your preferences?

d.If appropriate, suggesting a section on patients’ perspectives.

e.Reading the draft guidelines and providing feedback based on your views as a patient/carer.

They have a meeting on Friday 13th January 2017 (10:00-13:00) at their offices in London and day-return travel expenses will be reimbursed.

If you are interested in taking part, please email paul@lupusuk.org.uk

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