Me again: Hi It's been a very long time since I... - LUPUS UK

LUPUS UK

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Me again

ajanjua profile image
3 Replies

Hi

It's been a very long time since I last posted something . I was diagnosed with lupus nepheristis last year, was treated with cyclophosomide , mycropen, azi. Christmas last year I was taken off all lupus medication and was told to continue on 12.5mg perdisolon.

I have been feeling ok went back to work full time but found that by the time Friday came around the fatigue set in and spend my weekends resting

However I now seen to have gained so much weight that it is really dispressing me.

I became menopausal so suffer from really bad hot flusehes, my mouth is full of blood blisters , I've become diabetic and my blood sugar levels vary from 3.2 in the morning to 12.6 in the evening. I dont eat much during the day as I'm to scared to pile on the stones so my day would consist of porridge in the morning small salad for lunch and a fruit salad for evening meal yet the weight is going up.

I'm not a very tall person and I now look at myself and hate what I see back, my hair looks like a wire brush I have a puffy face and look ugle

So my point being what do I do next, is the weight gain cus I'm not on lupus medication or something else.

I have a appointment with my consultant on the 13th July and I don't know what to do.

I'm just sick and tired now of everything

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ajanjua
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3 Replies

Please tell your consultant that you wish to wean off Prednisolone. It can cause many problems in the long run including weight gain most of all - and diabetes, high blood pressure etc. You haven't explained why were you taken off your immunesuppressant Lupus meds? I hope your appointment goes really well but I think it would be worth discussing the effect that steroids are having with your GP beforehand as three weeks is a long time if you're feeling so low - and just in case you've developed Cushings. I know it's a balancing act between the disease and side effects but I'm sure there must be other options. Twitchy

in reply to

Ps I say this because a friend with RA has just learned that her weight gain and diabetes have all been caused by taking Prednisolone long term and she has Cushing's - which explains the weight gain.

ajanjua profile image
ajanjua in reply to

Hi

Thank you for your reply

That took me off the lupus meds as it was causing many side effects.

I just feel low sick of the hot flushes weight gain and feeling tired .

I tried not taking anything over the weekend could function at all

Hate having lupus

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