...nevermind I forgot what I wanted to type..... - LUPUS UK

LUPUS UK

32,058 members28,384 posts

...nevermind I forgot what I wanted to type.....

Julietsmombless2015 profile image

Great day lupus peeps.I hope you have a lower amount of pain, that is we all know there is no good days.Unless our flare up goes into remission..Good news for today i no longer have the butterfly rash concealer free.That is all plaquenil has done I thought I had adult acne SMH...

Written by
Julietsmombless2015 profile image
Julietsmombless2015
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Roanna profile image
Roanna

Julietsmombless2015, glad  to hear you are feeling somewhat better today, hope it continues.   I just want you to know that there are good days, many, and little steps like today where you are concealer free is a great day.  One day at a time works for me but in the 30+ years I've had lupus I can honestly say that 3/4 of those days where great days with little to no pain or butterfly rash. It does happen and the right combo of meds is what has worked for me, (and removing certain stresses also helps).     Keep at it and in no time you will feel somewhat your young self. Just remember to read your bodies warning signs and rest when you have too but stay active when you can for your mental well being.  :)

Julietsmombless2015 profile image
Julietsmombless2015 in reply to Roanna

its a little better now I have has this for a very long time.Tho I had doctors saying"maybe your just depressed etc...Like I'm crazy when I knew I was not and felt like something is killing me but nobody will listen.I like that I have a name fr it I guess.It makes me feel a little better.Before I would go into remission after months of torture and then think"omg they were right I'm crazy ...How do i feel great now?I would question my own sanity and dont have to anymore.

Roanna profile image
Roanna in reply to Julietsmombless2015

I think we all have been there, have a great day and remember your not alone anymore.

Not what you're looking for?

You may also like...

does anyone know where to find a flexible job suitable for people with SLE?

Hello everyone, I hope you all are doing good during this days, I wanted to ask if any of you...

Feelings of disappointment

With having Lupus and a few other conditions, being on steroids and suffering from anxiety and...

Colonoscopy update and thanks

Well I survived! I had sedation and it didn't hurt at all. I agree the worst part was the prep -...

Sun protection. Mineral sun lotion on a budget

Staying protected from UV rays is high on many peoples list this week, with layering and staying...

Opthamology appointment re Hydroxychloroquine

Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m...