Does anyone suffer fits with their lupus?
Fits.: Does anyone suffer fits with their lupus? - LUPUS UK
Fits.
Fits or seizures can be a symptom of lupus, generally when it is untreated or if the disease is fairly active and affecting the brain. You can read a bit more about fits in lupus in our factsheet, 'LUPUS and the Brain' at lupusuk.org.uk/wp-content/u...
My daughter suffered with seizures at the start she had 2 nasty ones which frightened the hell out of me as I have never seen anyone be having a seizure. The hospital have got her on anti seizure tablets and "touch wood" since then she hasn't had anymore. It was also partly to do with her Blood Pressure being too high and they couldn't get it down but now all is under control. 😊 X
I had seizures for about fifteen years..full grand mal, but there was no explanation for them, as I had not been diagnosed with an autoimmune disease then. Spent those years on epanutin and phenobarbitone, and then they disappeared completely. I now realise that it was part of this illness. I hope you are coping alright. X. (Love the way my predictive text kept putting me on peanuts instead of epanutin....would have been so much nicer!).
I've had non-epileptic seizures for most of last year apparently triggered by the medications they tried me on for the lupus. They looked like epileptic seizures but I stayed conscious throughout and sometimes they affected both sides of my body (mainly just my right though). They appear to have stopped now I'm settled on 5mg steroids alone although I had bouts of paralysis when I dropped from 6mg to 5mg. I'm being checked out for narcolepsy as I may have that as well as lupus and that may account for my weird reaction to things! My MRI's show a bit of damage that may be due to the lupus but not anywhere that would cause the seizures apparently.
I have blackouts which they thought was complex partial seizures. I would become aware of being "back in the room" and confused as I would have my phone in my hand or be at the computer. Very strange. It ended up as a form of migraine and I do get the most awful headache which Nortriptyline helps immensely. Get to see a neurologist so you can get help. Hope all goes well.
I had what is thought to be a seizure a couple of weeks ago whilst driving my car,and crashed it
As a result I am not aloud to drive for 6 months.
Have a look at my post seizure? Lots of people replied xxx
Hi there when you say fits, do you mean a seizure fit, or do you mean a black out fit xx
Like Janann, I have a history of migraine, I went on to have blackouts. I would drop to the floor. EEG shows temporal lobe epilepsy. Whether related to my lupus or not I am unsure. The neurologist says there is a cross over between migraine and epilepsy. My rheumy says the is a higher insidence of seizures in lupus. I am medicated now and stable.