Before I had this disease I knew very little about it. This applies to most people, including many medical professionals.
I fully acknowledge that in a lot of cases Lupus is 'an invisable illness'. Sometimes I don't completely wake up for hours after getting up, along with the usual symptoms, and it would be hard for anyone to understand other than those who might read this post.
However, I have now lost almost all my hair and eyebrows, and when I have a flare my skin erupts and I get red patches on my face that remain for ages, even when treatment steps up. (Not what a girl wants when the years are beginning to show anyway!!)
Although my hair is almost invisible the disease isn't!
We all know and feel for people who are seriously affected and when the disease become obvious.
My question is 'if we continue to describe Lupus as an 'invisible illness', are we describing the true picture?
Cancer is an invisible illness initially.
I often look on websites for hair peices and wigs, and it would be rare to see any mention of Lupus as a cause of hair loss.
I have no idea how else we can describe Lupus, but wondered if anyone on here could come up with any suggestions by doing a brainstorm. We might come up with slogan to make the public more aware and lead to more reasearch funding!
Just a thought!