no firm conclusions have been drawn yet, but it seems i may have SLE + sjogrens & co secondary to a primary immunodeficiency.
am being investigated by immunology now....had the pneumovax as instructed on saturday morning: so far so good: only a bit more tired, sore & achy
prepping for seeing rheumatology next week and immunology in 3 weeks, i discovered there is an organisation for primary immunodeficiency, so here is the link:
they have a separate forum too:
maybe someone on here knows this organisation...what i've found on the website is impressive
i hope those links work....