Completely fed up taking steroids for wegeners, have to take sleeping pill. MMF intake seems to require drinking lot of water.

[amita_valmiki]

Mentally worst affected. Restlessness and lack of coordination of ideas. Hope this too will pass.

[ijeasike]

i feel the same and actually i stopped taking mine. i am 109kg, from 70 to that in 2yrs. i have heard enough. i loose concentration, i might be watching tv and not have a clue of what is happening on it. i am tired i cant have it anymore and i will let my consultant know about my action on wensday. but hang in there tell ur consultant about how it makes u feel.

take care dear

[amita_valmiki in reply to ijeasike]

Thank you dear ijeasike. Suffering from Wegeners from last almost 7 years (complete in Feb. 2014). Have had 8 relapses, at present it is 8th relapse. Taking Ristova 8th time. Will be hospitalized on 9th Nov. again for two doses of Ristova. Hope this time I am cured for long. My work as a lecturer keeps me going, talking is exhausting but my subject being philosophy, I manage well with Yoga. But still the brain goes hey-wire, what to do? Some times I am in emptiness. From 60 Kg (ofcourse five years back) to 78 Kg now, do lot of walking, Yoga and try hard to occupy myself. In fact force my self. Thank you for partaking in my experience. Will have to tell doc. what I feel. With warm regards.

[ijeasike in reply to amita_valmiki]

I pray it will work. i dnt have a job cos my entire body is in agony so i cant keep a job and i have a 18month old boy who is a hand full. cant complain , i just cant remember having a pain free day. Just hang in there.