I am new here!!!

Been diagnoised with SLE Lupus with kidney involvement for over 5 years...looking for some friends and support in this VERY HARD journey!!

[lupus-support1 Administrator]

Dear Amanda,

Welcome! I am sorry you have been suffering from lupus for over 5 years. I would like to invite you to register (free) at lupus-support.org/LuPUSMB at the LuPUS Message Board.

LUpus Patients Understanding & Support (LUPUS) specialise in free information and free online psychological support. Our forums are private and cannot even be seen unless a Member. I validate each registration to try and ensure there are no spammers!

If you have any problems, email me at: roz [at] lupus-support [dot] [org] [dot] [uk]

I look forward to talking to you.

Ros

[lupus-support1 Administrator]

I should have mentioned to try and choose an anonymous Username/Display name and please read the What is the LuPUS MB? forum.

With good wishes,

Ros

[pattismith]

I've also had that for 2 years now, obs had Lupus for years that wasn't picked up on hence severe kidney damage . I suggest you educate yourself as much as you can on the illness, that way we can understand more and get to know how our body responds to different situations and medications as everybody is different. Being part of a site like this helps me alot, ask away it really does help as you will get lots of suggestions and feedback which will help you and show you that you are not alone.

[softie]

Hi, it is a hard thing to deal with and people don't take me seriously just because I seem to look " ok ", life is a struggle, the tiredness, pains and aches etc which none of my family seem to grasp... the worst bit I think is the memory relapses I get and sometimes I cannot get words out properly which can be embarrassing...I have no outside friends and no family come to see me, feel like i'm "swept under the carpet " I need a friend too.

[rafael]

Hi there

I have only just realised that my memory loss is due to the Lupus and not getting old. My memory is that bad when I write a list of my medications before taking them, by the time I write my last medication on the list I have already forgotten what I have taken!

I am on Azathiprine and suffering from muscle pain and also joint pain.

Would like to keep in touch.

Take care

Rafael