Hi all! Does anyone get acracyanosis, a blueish purple discoloration of whole hand/foot (like my pic) with their Raynaud's and Lupus? I think I get both! It's much worse in the cold obviously, in my hands, feet and knees and makes them hurt and feel numb. See my pic!
I read a lot about Raynaud's and Lupus but less about this so was just wondering if anyone else experiences this as part of their Lupus too? I was finally diagnosed after a very long few years!! Thanks people.
Rashes are very common in SLE. It’s almost impossible to see clearly from photos. I have various rashes!
Your story about waiting for a diagnosis is familiar!
With good wishes,
Ros
Hello rosyo/ surprised you have not received more responses. I have raynauds and Erythromyalgia with lupus. My hands a feet can be white red or purple. It’s affected my whole body/ see Erythromyalgia. Mittens socks and asprin. Best, Titters
I have Raynauds. And of all the immune symptoms that I am having, this has caused me the most painful, physical on the outside. Who knows what awaits on my insides? Lol
Mine is progressing to frequent ingrown nails at my fingertips ( weird for me) purple red and whit are common. I get mine mostly from stress. I sweat to death In Houston but I have to wear thick socks year round bc at night, under the covers, my feet would begin to burn! Like frostbite I’ve been told.
I don’t know if it’s neuropathy or Vasoconstriction. I will try anything to help.
My nail beds and cuticles on both. have changed, gotten thin and dry, no matter how much lotion.
I try to use natural product bc of my illnesses. But I finally broke down and did what my mom said ( I’m 58 and never wanted to listen lol)
Stop soaking in Epsom salts, slather Vaseline on and wear cotton socks to bed. OMG my feet have started to feel so much better. Even if it’s a petrochemical. At this point I’d put a nekkid squirrel on my head and stand on one leg in the basement if it would help!
I also stupidly, looked up images of Raynauds on the hand. Fresh. My hands match moderate images. I did not want to look further.
I’ve had this for 10 years ( diagnosed). You have lovely hands and fingertips. I used to as well. But either age, RA or whatever , can change. So dont( try not) rush the diagnosis or stress over what ifs. Enjoy what you have now.
It might not get that bad and then all that time worrying would be a waste. ( that’s what I did bc I wanted “ answers”. ) now I wish I could go back and enjoy my days before I got this way 😘
Could this be my lupus or something else
CNS Lupus & Noise Sensitivity
My lupus skin V the sun
