Methotrexate

[littlemissp]

Hello All

I haven’t posted for a while. Due to the eye retinopathy that I have due to chloroquine I stopped taking all medication for about 1 year. However, symptoms have now come back ie pains in joints extreme fatigue. I have now been prescribed methotrexate and have been taking it for 1 month. I am experiencing severe rashes all over my thighs and also hair loss, which is so noticeable that I’m thinking of wearing a wig. Has anyone else had these side effects and if so did they improve over time?

[lupus-support1 Administrator]

I have been using MTX via weekly injections for many years.

What does your consultant say about your symptoms? This is the person you need to speak with!

Seasons greetings!

Ros

[lil_darling]

Methotrexate unfortunately was a nightmare for with lots of horrid side effects and no noticeable benefits. I was fatigued to the point of being incapacitated, migraines (requiring hospitalisation) and was the final catalyst that brought on early menopause.

I hear it works wonders for some but I rue the day I ever started it. Have not had it for a year now and feel so much better for it. I know it works miracles for some but perhaps speak to your doctor about alternates.

Best wishes and hugs

Sofie

[littlemissp in reply to lil_darling]

Hi Sofie

Thank you for replying, I have not stopped taking it yet as I am running out of options as nothing seems to work for me. But the symptoms seem to be getting worse. I have brought a wig due to the hair loss, I feel a bit nauseas and I have great big rashes that are really really itchy and are all over my legs. The consultant is not sure whether this is due to the lupus or the medication.

I really don’t know what to do for the best

Happy new year to you