Muscle biopsy

[Tim_Thorpe]

Dr fernando phoned me this morning to tell me that they have decided not to go ahead with muscle after finding mysostis on an MRI back in 31 March this has been going on for 4 months now and think this has been a total fiasco From start to finish

She is now referring me to dr Rose at kings collage hospital,so I’m back to square one 😤

Last Thursday after getting cancellation by text

Dr fernando called me and said there was confusion over mri results and no longer wanted to do biopsy (3rd time it’s been cancelled)

But said there probably go for plan B depending on general meeting about me

Plan B was to put my aziophrine dose up and put me on other meds

Plan B I could of had 4 months ago if I didn’t want muscle biopsy

Just feel totally let down by dr fernando and been

Totally been kept in the dark and messed about for the last 4 months

Just one big joke

[lupus-support1 Administrator]

I am sorry to read this and no wonder you are feeling let down and fed up!

It’s not impressive to know that it’s taken another 4 months to do nothing!

With good wishes,

Ros