I’m 26 with a birthday next month and was recently diagnosed with Lupus. (My grandmother had it) and I had Mono twice which is what my doctors are thinking triggered it. I haven’t started Plaquenil yet as my rheumatologist still wants do a muscle biopsy to rule out severe muscle involvement. And I need to get my eye exam. My biggest issue is since we’re waiting to treat which I’m okay with since any treatment would hide inflammation. I’m struggling to work, I work full time and a supervisor in retail. I’m always on my feet dealing with stressful situations or customers which then will trigger a flare. Or sometimes I wake up in the morning and I’m running a random fever and am so exhausted I can hardly drive. Or I’m in so much pain I can hardly move. The anxiety of my work and at the time undiagnosed illness was causing me to be sick every morning I have to work. I guess my question is how have anyone else balanced their illness with work? Andy tips or suggestions, my PCP is going to do a reasonable accommodation request for me but any coping strategies would be appreciated.
Recently diagnosed : I’m 26 with a... - LUpus Patients Un...
LUpus Patients Understanding and Support
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