Tumid Lupus life expectancy

[dpatton317]

My husband was diagnosed with Tumid Lupus about 3 years ago and we are trying to get as much information on the disease as possible. He said that he saw an article that indicated that tumid lupus would take 10 years off of his life. I cannot find anything about that. Can someone tell me if there is any evidence that this will decrease his life expectancy?

[lupus-support1 Administrator]

This must have been very frightening to read, but I doubt you read it in any medical journal. Please don't troll the Internet because you will find disturbing reading by people who are not medical experts!

My advice would be to suggest you see an expert in lupus of the skin ie a dermatologist.

Definition: Lupus erythematosus tumidus (LET) is considered a form of chronic cutaneous lupus erythematosus (CLE).

With LET, as with other chronic cutaneous lupus diseases, the prevalence of lupus-related autoantibodies and development of systemic lupus erythematosus (SLE) is low. Overall, LET is characterized by intense photosensitivity, skin lesions, a benign course, the absence of systemic disease, good response to antimalarial treatment, and a tendency to recur.

Tumid Lupus Erythematosus: An Intriguing Dermatopathological Connotation Treated Successfully with Topical Tacrolimus and Hydroxyxhloroquine Combination

Abstract

Tumid lupus erythematosus (LE) is a rare variant of lupus erythematosus, which often follows a favorable course. A case of a young woman is illustrated, who presented with an asymptomatic erythematous, solitary plaque over her face. Histopathological and direct immunofluorescence examination established a diagnosis of tumid lupus erythematosus. She responded slowly and near-completely to hydroxychloroquine sulfate; however, a flare up occurred a month later. Addition of topical tacrolimus 0.1% resulted in complete regression without leaving any residual changes. No recurrence was seen subsequently.

ncbi.nlm.nih.gov/pmc/articl...

With good wishes,

Ros