LUpus Patients Understanding and Support

Swimmers

Hi all. I've suffered with Lupus for over 2 years. Im very photosensitive and cannot go out into daylight even with factor Sunsence 50+ plastered on my face (body fully covred)

I'm watching a program on TV which tells me the blue and purple light penetrates water and the other the other lights don't. Has anyone with Lupus spent a lot of swimming time in th the sun?

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If you are photosensitive, swimming in the sun may be problematic for you. You should wear protective clothing which will prevent the rays penetrating. You will also need to wear a hat which also protects you from harmful rays.

The protective sun screen has a short life and will wash off in the water!

When out of the water, sit under an umbrella that also has a filter to protect from harmful rays. Even when it is cloudy, you will be affected.

My advice is to see a dermatologist who can give you the advice you need.

With good wishes,

Ros

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Rash suits from specialist companies will probably be your safest bet if you want to swim, along with waterproof high factor sunscreen applied before you go out in the sun. Here is one such company:

equatorsun.com/sun_protecti...

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I also have extreme sun sensitivity, that is worse this year than ever before. I cannot think of any way to be safely outdoor swimming except maybe a wetsuit/diving hood. I have a couple sunblocks coming from Amazon, full mineral - 25% zinc. Kind of like the sunblock you would see on lifegaurd's and surfers' noses back in the day. I am hoping these blocks will allow me to be outside and garden for a half hour or so (still with hat, sunglasses and face scarf). I can let you know if they work. The other product I have ordered is an oral supplement called solarcare, which is polypodium leucotomos - supposed to provide some protection and lower inflammation...I'm desperate!! I'm trying these things based on recommendations from Dr. Dray - youtube dermatologist. I'm in Washington State and it takes 6 months to see a dermatologist...

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