LUpus Patients Understanding and Support
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Atacicept is a 'potential, exciting' treatment for lupus

21 November, 2017

SAN DIEGO — At the American College of Rheumatology Annual Meeting, Joan Merrill, MD, spoke about a study that she said is further demonstration that atacicept should continue being developed as a potential treatment for lupus. According to Merrill, the results also suggest that measurements of low-disease activity may represent not just clinically meaningful endpoints, but may also “work as endpoints in clinical trials to discriminate drug from placebo.”

healio.com/rheumatology/lup...

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Hi everyone I know I haven’t posted in such a long time I have systemic lupus erythematosus I was told I had scleroderma only now to find out that I have systemic scleroderma I also have Reynolds crest and also since having a scan on my hands I have degenerative arthritis in my hands and arms so things have not been good I had to have my gall bladder out just over a year ago but within a short period after I have been having a lot of trouble with my stomach and bowel it’s got so bad now that I have bowel incontinance I am having bio feed back from physio which does not seem to be helping to try and tighten my muscles last Friday I saw my colorectal surgeon at Ipswich hospital of which he done a rectal examination only to find I have know feeling from the bowel so now I have to wait for an appointment for Norfolk and Norwich hospital for some more tests but every thing I eat comes straight out of me several times a day without me knowing which is very embarrassing for me and I can’t keep protein in I have lost over a stone in weight in less than 2 months so I’m now down to nearly under 8st I am 58 years old and wandering if anyone else has had any thing like this please

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I am very sorry to hear this story. I think you should see your GP and ask why you haven't been admitted to hospital given the severity of your symptoms?

You need urgent care!

With good wishes,

Ros

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