Lupus

[andreabm]

Iv been told my lupus is under control which I am happy about but I still feel like utter crap with joint pain etc Is this normal to still feel like this when told its under control ??

[lupus-support1 Administrator]

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

This is a difficult situation. I presume your lupus specialist has told you that your lupus is under control, but you do not feel well and perhaps worried that if you tell your doctor how you are feeling, s/he will not believe you?

If your doctor is solely going on blood tests and your blood tests are "normal", this is not necessarily a good enough indication. Sometimes, blood tests do not show at the time that you do not feel well.

If you are in pain, your doctor can help to reduce the pain. If you have symptoms such as fatigue and/or you don't feel well, this is more difficult but nevertheless, I think you need to speak with your doctor.

Do you have people who support you? Your partner/family/friends? It is more than understandable if you are also feeling anxious/depressed. It is a very big deal to have an incurable and unpredictable disease such as lupus. As you have not said very much about yourself, it is very difficult to assess your situation.

If you want to talk more, I recommend our other website LUpus Patients Understanding & Support (LUPUS). The details of the LuPUS Message Board are below.

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

With good wishes!

Ros

Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.