New Lupus Warrior

Hi Lupies! I just wanted to reach out and share my story. I was recently diagnosed with lupus with past summer. August 2014 and went through a very trying time with my faith and with my health. I never knew this could be a real situation. Although my sister is fighting lupus, I still didn't understand the illness until it attacked my body.

Lupus can certainly take a toll on your mind and body.

Now I am learning so much more about lupus and how it affects the body and mind. I'm thankful that I am not alone and am here to support those who are battling the disease.

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  • Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

    We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

    By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

    When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

    Finally, please go to: lupus-support.org/LuPUSMB and Sign Up.

    I look forward to talking with you more!

    Sometimes we need to talk to people who understand and who are not family or friends.

    With good wishes!

    Ros

    Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.

  • Welcome BrittneyP!

    I was diagnosed in July 2014 with SLE and then with Sjogrens in September 2014. I now also have APS. I knew nothing about AI disorders prior and yes, they do take their toll on the mind and body!

    Some days, I get very frustrated with my new "normal" and I long to be the woman I was before I got sick. I am thankful for the good days.

    This site has been a godsend to me! The folks here are amazing - willing to share experiences, knowledge and a shoulder. We all need help to cope! I never really thought of myself as a lupus warrior but I guess I am since I fight it every day. My husband is my biggest supporter (along with my sisters and close friends) and his humor gets me through. When I was first diagnosed he bought me a vintage "Froot Loops" t-shirt! I just had to laugh! He even bought one for himself and wears it proudly. He's a keeper.

    Glad to have you here! 😊

  • Hi!

    Thank you so much for reaching out and sharing your story! It's amazing feeling to know you are not alone and isolated! Trust me, I have felt both. I'm praying for everyone here and hope to overcome!

  • You can read my profile for the FULL story. It has been quite a journey! I learn more about my APS diagnosis next week and how it all fits in. Sigh. I just want to be healthy! Keep the faith!

    Tracy

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