I had my miscarriage in April 15 .
After the test I was detected lupus anticoagulant positive and told to repeat the test after 8 weeks before trying to become pregnant.
Is there a treatment and can I deliver healthy child...
Which specialist Dr do I need to refer for treatment
You should see a ob that specializes in high risk pregnancy. You will also need a hematologist. Most likely you will need to be on blood thinners through out pregnancy. Usually an injection that you give yourself. Hope that helps. Good luck!
Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.
I am very sorry to read you have had a miscarriage. This must have been a devastating experience for you and I hope you were given support at the time and now.
The antiphospholipid antibody (Hughes) syndrome is where the blood's consistency is "sticky". This means that less oxygen gets to parts of the body and this includes the womb. If the womb is deprived of oxygen and thus the placenta gets too little oxygen, it dies and a miscarriage (usually before 12 weeks) is the result.
The good news is that this is treatable with blood thinners. This can be as little as baby aspirin. In some cases, warfarin is needed. For women who wish to become pregnant, low molecular weight heparin injections ( heparin does not cross the placenta) is given.
The syndrome is named after Dr Graham RV Hughes, who was the Consultant Rheumatologist at St Thomas' Hospital Lupus Clinic. He can be seen privately at the London Bridge Hospital which has a private Lupus Clinic.
Under the NHS, you can ask for a referral to see Dr Munther Khamasta who is a Consultant at St Thomas' Hospital, London. He is head of the Lupus Pregnancy Clinic and their success rate is clearly seen by the number of babies photographs on the walls.
If you have private insurance see Professor Hughes. If under the NHS, see Dr Khamasta who can also be seen privately at the London Bridge Clinic.
We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.
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I look forward to talking with you more!
Sometimes we need to talk to people who understand and who are not family or friends.
With good wishes!
Ros
Disclaimer: No attempt is made to diagnose or to make any medical judgement. You are advised to seek the advice from your own physician. LUpus Patients Understanding & Support (LUPUS) is not a substitute for your own doctor.
Hi good news I was diagnosed with sle when I was 16 at 19 I found out I was pregnant I also carry the gene so I only had a 50 50 chance of carrying my 2 children I was on steroids and injected twice a day with heparin I was closely monitored and had a ceserian 6 weeks prior to my due date to a baby girl she is now 19 and healthy same scenario for my son but had a few more complications he was also 6 wks early and will be 16 this year it is possible I am proof of that hope this helps
I have had lupus since I was 13 (now 34!!)
I have antiphospholid syndrome too.
My first pregnancy went smoothly. My second resulted in stillbirth as I had blood clots in my placenta. Because of this, During my 3rd pregnancy, I took aspirin 75mg and a clexane injection every day on top of regular meds and had a healthy baby boy at 37 weeks!
I am currently 33 weeks with my fourth pregnancy (yes, I may be crazy for having lupus and 3 children!) and am undergoing the same treatment with blood thinning meds.
It is possible - like the advisor says, there are specialists to care for you and support you through your experience. St Thomas' and Kings College are simply amazing!
I am new here. :-) 
Utter Despair!
I'm collecting ists
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