Hi, I've joined this for support. My daughter is nearly 12 and has been poorly since January. After many GP, hospital consultations we finally saw a rheumatologist yesterday and they have indicated she may have Lupus. They are testing for C1 Esterase inhibitor and full bloods again, plus liver function and she is going for ultrasound and MRI next week due to chronic pain and swelling in her joints and muscles; particularly hands, wrists, groin and knees although the pain moves around and in her chest. She has chronic idiopathic urticaria and are positive she doesn't have rheumatoid arthritis or other autoimmune diseases. They have put her on morphine with paracetamol for the pain to get her comfortable, and she takes 2 anti-histamine a to control the rash but mainly stop the itching. She is being referred to a specialist rheumatologist in Leeds. She has so many symptoms, and it affects her mood; she gets very low. I hope it is just chronic urticaria but they have indicated it may take years and trial and error to get it all under control. I have read a lot about Lupus and asked very early on if it could be Lupus due to the many symptoms and I know she is relatively young but is starting puberty.
I suppose I have no questions, but wanted to share and get some support.