Sorry, it's been a while, but I have had other stuff to keep me occupied. To bring my story up to date, I was discharged by Rheumy at Chaple Allerton in December last year as my blood results were enough to convince them that I do not have Lupus, although they recognize that my symptoms seem to be systemic and troublesome. they suggested a referral to Immunology, as they concur that my problems are not Gastro, even though some of my symptoms are, it is their conviction that I could have a tropical disease that is effecting my immune system. I was referred there by my GP in January and am still waiting!
In the meantime I have been diagnosed with Glaucoma and my eyesight is deteriorating dramatically. And I have continued with my physiotherapist who has been great, and indeed has just referred me back to Rheumy, at the local hospital because the physical condition of my joints which are producing physical evidence of drastic and rapid deterioration does not correspond with my bloods which indicate no inflammatory markers, she is convinced that the accumulation of symptoms that she is witnessing must be related and must have a common cause. The Dermatologist, however, I was much less impressed by. She was very dismissive and doubting about the light sensitive rash (lets see what she has to say this time, as since the sun has come out I am beginning to look like an alligator again>, and even doubted that the Hydradenitis that was diagnosed some 15 years ago, was even that.
To add another complication to my already strained bow, my orientation and balance problems of last year have progressed and are now causing me to fall so this morning my GP has referred me to Neurology.
It's already been a long journey, God only knows where it ends...... but onward and upward as they say!!