my situation is complicated so I will try to condense it and hope someone can give me advice. Lot's of symptoms since my 20's. No help off Drs except misdiagnosis of fibro twice over 8 yrs for which I put a complaint in for his appalling manner. My symptoms worsened greatly last 2 yrs, (47 yrs) with falls, numbness, confusion, blurred vision Etc. Told there was nothing wrong with me except anxiety.GP referred me for appt with psychiatrists(whilst smiling and saying he didn't think I was mad). Backfired on him as this Dr thought lupus for me and my 12 yr old daughter (she has the facial rash aswell as symptoms) and I was referred to lupus Dr.
To cut it short, the lupus Dr immediately thought mild lupus for me, positive schirmers & lupus anticoagulant aswell as 20 yr history. This changed in Jan when the Dr that misdiagnosed me rang him. I was then dx with autoimmune rheumatic disorder whilst waiting for lung cat scan results. Became ill in March n was dx with polymyalgia rheumatica by Gp. Returned to lupus Dr in May who retracted autoimmune dx and said just the pmr without having the cat scan results and saying he didn't need to see them, wouldn't discuss anything, answer questions etc and discharged me. ( pmr is an over 50s illness so he has discounted 20 yrs of symptoms)My gp won't help my daughter who's symptoms are verging on the ridiculous. When my daughter had protein in urine with no infection, GP said it's far more worrying if she has an infection. Anemic for nearly 3 yrs.. Temp loss of sight (told it was nothing to worry about as it didn't last very long) confirmed inflammation in eyes, by optician. Back pain, numbness in legs, Swollen glands, Hair loss, weakness, spasms, stomach pain, vomiting etc. The list is too long. Due to these 2 complaints I previously made I am now blocked constantly when trying to get help for her.
I live in a village and it seems changing GPS wouldn't help as all it takes is a phone call to say I'm a problem patient.
I have tried everything I can think of for over 2 yrs now and I don't know what else to do.