LUpus Patients Understanding and Support

Any help please

Hello i would just like to see if anyone has the same problems and how their gp has helped, back in 2001 i got breast cancer, 2006 i had to have a hystorectomy since 2008 i have not been well at all 2013 i finally got someone to listen to me and tests were done, i was diagnosed with gall stones diviculitus fybro and at the moment having to wait for my bloods to be tested again for lupus even though because of the rash pain ect my gp wants to have them retested in 2 months time, my problem is in the mean while iam virtually living in bed as i feel so ill i have just had my matrifen patches increased to 50mg im still in heaps of pain feel sick and burning hot even though im in bed trying to get warm, i would love some advice on how i can improve my daily life as my gp just looks at me as if im insane please help if you can thankyou in advance for any sort of help xx

1 Reply

Welcome to LUpus Patients Understanding & Support (LUPUS) at HealthUnlocked.

I am very sorry to read about your pain and distress

We also have another website called the LuPUS Message Board where you can also post questions and talk to other people. Registration is FREE and we offer free information and free online psychological support. We specialise in psychological support with our own counsellor/psychotherapist available.

By becoming a Member, you will have access to the private forums and because they are private, only Members have access and even bots and search engines are forbidden.

When you register, please use the following format for entering your date of birth: nn-nn-nnnn where n=number. Please use the "-" separator and not "/".

Finally, please go to: and Sign Up.

I look forward to talking with you more!

Sometimes we need to talk to people who understand and who are not family or friends.

Be well!



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