Good news from scan after being on Os... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Good news from scan after being on Osmertinib for 3 months...

scraapi profile image
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Good news from CT scan. My oncologist said the report included words like 'reducing' and positive so Osimertinib is working.

The scan also showed an amount of fluid around my heart so organised an echocardiogram. I had this on Monday and the lady performing the test was so nice. She told me there was a 'moderate' amount of fluid. She obviously can't say too much but she did say it was not a 'small' amount, but also was not a very'large' amount. My 'moderate' amount may need some treatment. My oncology team will obviously make that decision if necessary so am waiting to hear on that.

Also on Monday (the hospital called as they had a cancellation) I had the MRI on my back. That is such a difficult position for me to lie in, especially for an hour!! Anyway done now and again, wait to hear from my oncology team.

Thanks again for reading.

Best wishes

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6 Replies
RoyCastleHelpline profile image
RoyCastleHelplinePartnerAsk the NurseRoy Castle

Dear scraapi

It is encouraging to hear the words' reducing' after 3 months of treatment and that they will manage to treat the fluid around your heart, once your MRI results are in.

It sounds like you are receiving excellent care and wish you all the very best.

If there is anything you would like to discuss once you have your results, you can either email ask the nurse at lungcancerhelp@roycastle.org or call our free phone nurse led helpline number on 0800 358 7200 Monday to Thursday 0900-1700 and Friday 0900-1600.

Kind regards

The Roy Castle Support Team

scraapi profile image
scraapi in reply toRoyCastleHelpline

Thank you very much. Appreciate your message very much.Best wishes

sassassas profile image
sassassas

Hi scraapi thats fantastic news to hear about the osimertinib especially after the tough time you've had over these last few months. And well done for getting through the MRI. As RoyCastle says, once the results are in, your team will be able to get you the best treatment.

Sending you love, Sarah x

scraapi profile image
scraapi in reply tosassassas

Dear Sarah, thank you very much for your messages, it is much appreciated.Best wishes, Celia

Murmeration profile image
Murmeration

Thank you so much for posting this good news. I started taking osimertinib 7 days ago so encouraging news is great to hear. I do wish you all the best and hope you continue to get the best treatment for you.

scraapi profile image
scraapi

Dear MurmerationThank you very much for your message. I had always heard good things about osimertinib, and am so pleased.

I wish you the very best of luck and really Osi works well for you too. Keep us all posted.

Very best wishes

Celia

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