“The NCRI is currently seeking patients, carers and others affected by cancer (“consumers”) to represent the patient community on the following NCRI Groups:
•Gynaecological Group
•Haematological Oncology Group
•Lung Group
•Living With and Beyond Cancer Group
•Sarcoma Group
•Teenage and Young Adults & Germ Cell Tumour Group
•Upper Gastrointestinal Group.
Before filling in an application, we recommend reading the NCRI Consumer recruitment pack in full, which outlines the key information needed to get involved with us.
Having served 2x 2 yr terms on the NCRI lung group from 2014 - 2018, if anyone is thinking of applying, I'd like to reassure them that having had no experience of this type of work before being appointed, good induction training, toolkit, buddy system and scientific mentor were available to help with any queries. It's not a question of understanding the detailed science or research methodology in the various trials but the ability to learn, participate in the discussions after reading the various papers and offer a patient/carer (they term it 'consumer') perspective to the multidisciplinary group of professionals. There were a couple of meetings a year, an annual trials day and NCRI annual conference - I learnt a huge amount during my time and hopefully contributed to others' thinking about patients' perspectives. good luck to anyone applying.
It's a role on a committee that oversees the whole portfolio of clinical trials in the UK to comment on the progress of recruitment, progress, new trials coming onto the portfolio and some closing due to lack of recruitment or results not achieving desired outcomes or funding stopping.
It did - a couple of times a year and attending the annual conference which has been in Liverpool, Glasgow and was supposed to be in Belfast in 2020. However since lockdown all meetings and work have been online and I suspect will continue that way for some considerable time - thus opening it up to more people and enabling more clinicians to take part online as they can't all be spared to go down to London from across the country.
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