Live Chat *Now Closed* Tuesday 9th Ju... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

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Live Chat *Now Closed* Tuesday 9th June 2-3pm

RoyCastleHelpline
RoyCastleHelplineAdministrator

Welcome, Roy Castle Lung Cancer Foundation Community, to our 'Ask the Nurse' live chat. We are here to listen to your experiences and answer YOUR questions.

For the next hour, please feel free to share your experiences or ask our nurse any questions about lung cancer treatments, symptoms, side effects and coronavirus. This is open to people living with lung cancer, family members, carers and those worried about symptoms.

Please type below. Anyone wanting to speak privately in confidence should either PM us or contact us on our helpline 0800 358 7200.

Don't forget to keep refreshing the page to see the latest questions and responses.

We are here for you - throughout the pandemic and beyond - so keep the questions coming and we'll do our best to answer them for you and help reduce any anxiety you might be feeling in these worrying times.

5 Replies

Given the changes in shielding advice, travelling and the expectations of wearing masks/face coverings, as those with respiratory conditions are exempt from this, how should people display/explain why they're not wearing them if confronted?

At the start of pandemic, I recall seeing images of covid ward/ICU with yellow lanyards worn by respiratory staff so they could be easily recognised.

I wondered whether Roy Castle have considered coming up with sort of symbol/badge/lanyard that we could wear as 'official'?

RoyCastleHelpline
RoyCastleHelplineAdministrator in reply to JanetteR57

Hi JanetteR57

This is something we would be happy to look into. It is another new scenario that has presented throughout the pandemic. It may be better to be something generic and not unique to Roy castle. We can certainly feed this back and look into ways of identifying those unable to wear face coverings due to health conditions.

We appreciate that new scenarios will present themselves as things slowly return to normal and we may find for our community it may be more confusing and complicated than it was during lockdown. so we really appreciate you raising issues as they arrise. we also know that advice is different around the country, as some parts of the country open up slightly more quickly than others. So any comments like yours will help others think about how to handle these new scenarios in advance.

Regards

Roy Castle Helpline

Thanks - that's helpful - maybe joint working with asthma UK/BLF? I've already had stares to contend with - it seems like a blue badge situation where people comment not recognising hidden disabilities so if we could avoid unnecessary questions/judgements that would really help. it also appears as if airline travel (when/if it reopens) will be really difficult as it seems facemasks (not coverings) will be compulsory - unable to see any exemptions on their websites so increased temperature and breathing in exhaled air likely to add to any respiratory condition however well managed meaning people will arrive in quite a poor state...

RoyCastleHelpline
RoyCastleHelplineAdministrator in reply to JanetteR57

Hi JanetteR57

This is certainly an evolving scenario, and therefore an issue that needs consideration. You are right regarding air travel, this is also an area that seems to have an evolving policy.

Hearing our communities experiences and concerns helps us a charity adress the current situations.

People with respiratory conditions will need to risk assess for the forceeable as much as possible, but we appreciate that some in our community will have to start returning to some sort of normal.

So your comments are very helpful to both us and the community.

Regards

Roy Castle Helpline

RoyCastleHelpline
RoyCastleHelplineAdministrator

This Thread is *now closed* the next live chat is on Tuesday 16th June 2-3pm

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