Anxious and uncertain

[Becks1]

My mum has sclc. And to cut it short... has been told she has now 2 months left to live.

At what point do I get McMillan involved in care? I don't want to leave it too late...

[Bow-19]

I would say speak to the Macmillan Nurses now and have a relationship with them. They are available to offer support at all stages. I was given 10 months to live nearly 4 years ago and am still here. I had support from Macmillan Nurses in the early stages of my diagnosis and then about a year later for pain control. I would meet them now so that you can start a relationship with them, find out what they have to offer and then you can dip in and out when needed, phone when needed and get support for both of you. They will know your mums local area and the facilities well too. I would say it best to do it this way rather than wait for a crisis. That's what they are there for. Hope you find them as good as I did Xx

[RoyCastleHelpline Partner Ask the Nurse Roy Castle]

You should as Bow -19 states refer yourself to the McMillan nurse ASAP in order for your mum and yourself to be assessed. This will ensure that you get maximum emotional and practical support when you and your mum need it.Also,your mum will be eligible for DS1500 benefit if she is not in receipt of this already.

Please don't hesitate to contact the Nurse Led Helpline if we can be of any help :freephone 0800 358 7200.

Kind regards,

All the team at the Roy Castle Helpline.

[Ghost-by-the-coast]

I have to agree. Now would be a perfect time.

Estimates like this are not especially precise and the tendency to play with numbers still exists in the medical profession to some degree (If in the 90's you told you doctor you drink a bottle of red a week he'd record three) although it still goes on.

By what is likely no coincidence my Father passed away from cancer. He was given an estimated two months but was warned not to delay. My father in Law had been told three to six months both terminal at diagnosis the same as me. Dad passed away ten days later, the wife's father lived 16 months in good nick until the last week or so.

[dizzie-wh]

Hi there and I am SO sorry to hear of your Mother's diagnosis. Totally agree with other posters that the sooner you get in touch with a Macmillan nurse the better. Normally you can be referred by your GP. I have NSCLC and was given 3-4 months BUT still here after 3 and a half years- I met my Mac nurse right at the beginning and I am able to call her anytime for help. Their own slogan is "Macmillan isn't just there for time of death but always". All the very best and I SO hope your Mum can be kept as comfortable as possible.

Love Diz xxx

[Avanancy]

Yes I think everyone right get in touch with McMillan you need suppprt. My mum has some new symptoms ? My heart goes out to you x