Please get in touch if you have had this drug or are currently taking it. We have a submission to the medicines consortium for 1st line availability and need patient quotes to strengthen the submission. you can either reply below, PM me or contact the office on 0333 323 7200 ( option 2)
thanks
Nicky
( Support Services Manager)
Hi my husband had pembrolizumab as a first line of treatment end of November 2016. Only had one dose due to being ill with a chest infection prior and at the time of infusion but hospital staff chose to continue with the infusion. Next day I was admitted to hospital for a two week stay with pneumonitis and chest infection, therefore I was told I was no longer able to continue with the pembrolizumab. Good news is though that my husbands tumour has shrunk from 7.5cm to 4cm and he isnow on 12 weekly chest X-rays to monitor the tumour. His first chest X-ray is end of next week so fingers crossed that it's stable or shrunk again!
I started on Kaytruda on Monday this week as second line treatment. Have felt fine since but obviously it's far too soon to assess it's effectiveness. I have three planned cycles before my next scan.
Yes I'm on Pembrolizumab I have had 2 infusions so far another due 8th April.
Thanks so much to you all for replying. I am in Newcastle at the Patient info day Monday, so will be putting the submission together on my return. You could either PM with a contact so we can discuss or provide the required info on health unlocked. I am really after some quotes relating to quality of life whilst on the medication and how it is affecting the cancer. Maybe how you think it compares to chemotherapy, whether you have experience of chemo or not. Alternatively if you phone 0333 323 7200 and leave a message i will get back to you next week. It is all confidential and no names will be printed in the submission. Once again thanks, the patient voice is crucial to getting drugs passed for use by the NHS
Nicky
( Support Services Manager)
Hi Nicky, I have been on Pembrolizumab as a first liner fo a year & have had 3 scans each scan shows significant shrinkage my side effects were dry mouth a slight rash & inflammation of arthritis in my wrist.all of which have calmed down. I am able to work,holiday,and live a normal lifestyle with a little fatigue.If I can help my profile & email is under Clem1
Iam on this drug every 3 weeks and doing great cancer in liver has shrunk and lung and only my 11 th treatment andnot a lot of side effects
My husband was given this treatment after having emergency radio therapy he had 3 rounds but unfortunately he passed away on the 16th November 2018 but while he was on this treatment he had no side effects at all, hope this helps xx
First time I am spending time with a smoker, my mom, not sure how this will go.
Do you have views on surgery?
Pain similar to sinus trouble. 
