Good morning everyone
My husband was diagnosed with NSCLC in May 2016 and I joined this wonderful web site straight away for help and guidance. Over the last few months I see many off the followers are able to put a stage development to this awful disease and I asked my husbands consultant what stage my husbands NSCLC was at and he said unfortunately he was unable to answe this because it doesn't have stages and I wondered why my husband was any different. When he was diagnosed we were told with out treatment he had 3 - 6 months life expectancy and with treatment maybe 6 - 24 months life expectancy, my husband was able to tolerate 5 of the 6 treatments and now we have been told they can't give a time indication due to the treatment being incomplete. My husband has recently started complaining of pains in his stomach and his appetite is decreasing, he is becoming very lathargic and spending time in bed most days. He had a PET scan last week and we are awaiting the results on the 19th January. I have been off work due to anxiety exhaustion for 11 weeks due to my husbands diagnosis, my father spending 10 days in ITU due to renal failure and then my daughter having my first grand child and having no support network from her husband. I have been told recently that I am disgrace as I should be at work because it will take away some of the anxiety because I will be with other people and be distracted from talking or thinking about, these cruel people don't know what it is like to live with the fear of losing two of the most precious people in your life and caring for them on a daily basis whilst they are poorly. These people have now scared me because I am frightened I will lose my job due to this and I am at my wits end as I need my job to pay my mortgage.
Sorry for rambling on but I just wondered why my husband was any different from other people with NSCLC because we want to know what's going on so we can build our memory book together.
Thank you for your kindness and support.