Does anyone have history or experience with Mucinous Adenocarcinoma? Per my mom's new oncologist, there just isn't really a treatment that is known to work for the mucinous variety. She has been on chemo for 9 months, and just started Keytruda, which after 2 treatmens has not done much. Curious to see others experiences. New Dr. also mentioned Iressa...
Thanks to all <3
Yes, mine was mucinous. My doctor put me on Cisplatin and etopicide with concurrent radiation. That was 2010.
I had mucinous adenocarcinoma - 7cm tumour and half my left lung were removed in upper left lobectomy in December 2010. I was told there was little evidence that chemotherapy after surgery worked for this rare type but since then the IASLC who classify tumour staging etc have changed not only the name it was given but also the T stage (moved from 2 to 3 due its size) and at 7cm I would now have been offered chemotherapy.
Having been involved in lung cancer research since the end of 2013 and met many patients living with long term effects of chemotherapy, I'm relieved not to have those. All treatments have changed since my diagnosis as at the time there were only targeted agents for EGFR positive mutations but since then new treatments have been developed for many different mutations and those characteristics are what drives the tumour and determines its treatments as well as any other conditions the patient has or their fitness.
The nurse who encouraged me to get involved had Tarceva and Iressa for her EGFR mutated lung cancer back when these were only available on clinical trials so it sounds as if your mum is EGFR positive. As there are so many different types of lung cancer even within non small cell, it's important to find out which your mum has - there are dedicated groups for some of these EGFR+, ALK+, ROS1ders, and KRAS kickers.... and these groups keep on top of new drug developments and side effects that impact patients with those specific types.
Currently non small cell lung cancer (of which adenocarcinoma is one type) has more treatment options available than small cell although there are some promising trials and evidence of responses with immunotherapy and combination treatments with small cell coming through..... this may help explain a little more... good luck. roycastle.org/about-lung-ca...
I'm curious about the doctor's comment about Iressa. Did your mother have biomarker testing?
You are amazing!
betsybpr Very healthy person until now! Looking for support and someone to talk to with similar diagnosis
Mums surgeon appointment, feeling anxious 😩 
Wiped out
Opdivo
multiple new nodules on 1st CT scan after surgery
