Bad news: Hi all, I just got my... - Lung Cancer Support

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Bad news

RwHayes profile image
RwHayesCommunity Superhero
22 Replies

Hi all,

I just got my results of the scan today and it shows several new spots on my liver. So the chance for cure is gone , he said he recommends we try immunotherapy combination, he thinks that is all around the best option. I knew this day would likely come but I sincerely wish it would have been later on down the road. Thanks to everyone who has prayed for me I appreciate all of your sopport.

Thanks,

RW

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RwHayes
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22 Replies
gibdonnalee profile image
gibdonnaleeCommunity Superhero

RW, I am so very sorry to hear this news. I know how hard it must be for you. Did you decide if your going to try the immunotherapy or not? Maybe it would be worth a shot? That's a decision you'll have to ponder. My thoughts and prayers are going to you.

scifiknitter profile image
scifiknitterBlogger

RW,

I am so sad to read this news. SCLC can be very aggressive, but I was hoping you would be one of the lucky ones.

Combination immunotherapy is showing promising results with SCLC, and it looks like the combination is absolutely the way to go with your type of cancer. The NCCN treatment guidelines, which are a kind of bible for oncologists, list combo immunotherapy as a suggested treatment in the second line. I'm attaching an article with very recent research findings.

Once again your doctor is right on top of the latest research. Make sure he fills you in on possible side effects, and make sure you understand clearly when you need to call the office.

I think it's time for another steak dinner with the family - to be together, and enjoy the pleasures of life, and gather strength.

Hugs and well wishes, Anita

ascopost.com/issues/march-1...

Denzie profile image
DenzieModeratorVolunteer

Very sorry to read this but I whole heartedly agree with everything Anita said. They are seeing good results with the combo immunotherapy at this time and there's still a chance you can become NED.

Remember to plan for the worst and hope for the best. Don't stop making life plans. Visit family, work your bucket list. Find something good or beautiful each day.

frisk profile image
frisk

So sorry , and I hope the immunotherapy will be the ticket for you!

Steph60 profile image
Steph60

I am so sorry. You are a fighter and I know you will keep doing whatever is right for you. You are a role model to many on how you have handled all that you have gone through. Sending you a big hug!

Kenny1108 profile image
Kenny1108

Sorry to read the news. I will pray for you and family. It ain't over yet though so plan out you next step and ask God for peace.

Lisamk55 profile image
Lisamk55

RW. Don't give up. New spots can be treated. There are always options, and immunotherapy is very effective. Prayers to you.

JeanE41 profile image
JeanE41

I'm so sorry to hear this news. You have some difficult decisions to make and I'm sure you will make the right one for you. Good thoughts and prayers coming your way.

Jean

FtB_Peggy profile image
FtB_Peggy

RW, how kind of you to share with us - you know how we wonder and wait to hear.

I am joining the others in saying how sorry I am. Also joining them in encouraging you to trust yourself. Choose what sounds right and go with that. Your doctor does seem right on top of all of this, which is wonderful news. Take your time, make a choice, trust yourself. It is good you have another hopeful option to consider. I am just sorry you have to think about it at all. Caring hugs.

PegD profile image
PegD

RW - It is very disheartening hearing about progression and the unknown of new treatments but - that is what we do, right? We keep going until we don't. Hang in there because you're still here! Thoughts and positive vibes coming your way.

Lesleykay21 profile image
Lesleykay21

No giving up, RW! You can beat this- you've come too far in your journey- just a little obstacle, but you've proven you can do it! I'm thinking of you, and stay positive!!!!!

RwHayes profile image
RwHayesCommunity Superhero in reply toLesleykay21

Thanks Lesley ,

I've had a hard time accepting it this time around. Always before I had a glimmer of hope, but this time the chance for cure is gone. But you are right there is always room for a miracle!!!!!

Thanks for your support,

RW

Lesleykay21 profile image
Lesleykay21 in reply toRwHayes

Yes- there's always room for miracles, but I truly think you're going to beat this. It's a hurdle, you've come so far, and have done incredibly well, don't let this "news" be a determination of everything. These spots can be gone with the treatment they are suggesting. I believe they will be. You're strong RW, keep going! I'm going to ask my Dad in my prayer tonight to make sure he keeps a watch on this! Thinking of you! And again.... don't give in.

ThePurplePlace profile image
ThePurplePlace

Dear RW,

Very sorry to read your latest update, this is the news we all hope we never hear and what always causes Scanxiety for each and everyone of us. -- I wish you the very best and do know two gals who are on the Opdivo/Yervoy Immunotherapy Combo and have been for just about a full year now. They both were experiencing progression when then were put on this "Trial" and so are doing well -- both are stable and have not had any serious issues with side effects. I hope you'll continue to have that same experience

I'm also still going to HOPE that the "cure" will come for for us ALL, and very soon! Keeping you in my thoughts and prayers.

~ Lisa

RwHayes profile image
RwHayesCommunity Superhero in reply toThePurplePlace

Thanks Lisa,

That is encouraging , did they also have small cell?

Thanks for your support,

RW

ThePurplePlace profile image
ThePurplePlace

No, non small cell, however I'm still optimistic for you....

Ruthie1950 profile image
Ruthie1950

I'm sorry to hear your news. Cancer is a horrible disease. It shows no mercy. I pray God will give you the strength to keep fighting.

cloft profile image
cloft

So sorry to . Hang in there. Thoughts and prayers you way

SusieJo1948 profile image
SusieJo1948

RW I know your giving up. But please don,t there's an angel beside you and she,'ll be there for you. Don,t say miracles don,t happen,they happen everyday. What happened to me I wasn't,t supposed live. But look at me the cancer is gone and you can,t say it wasn't,t a miracle because my angel is still by me and she,'ll be there the whole way. So will your angel she,'ll be right there with you. Believe miracles do happen. Love susiejo

Clofto profile image
Clofto

So sorry to hear your news. I just want you to know some of your posts gave me the "spark" I needed to carry on. I am praying that the immunotherapy works for you.

pmsusan99 profile image
pmsusan99

Not true, woman I knew had some tiny tumor in brain, one liver and keytruda, she is 12yrs. Remission. Never give up.

Texas64 profile image
Texas64

Hi RWHAYES. How are you doing? You haven't posted in a while. Praying you are doing well

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