Personal update: Here comes clinical t... - Lung Cancer Support

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Personal update: Here comes clinical trial #2!

scifiknitter profile image
scifiknitterBlogger
17 Replies

Dear friends,

If you haven't seen me around much lately, it's because I've been very busy working on the EGFR Resisters project, plus I've enrolled in a clinical trial. I want to NYC last week for my initial consultation with Dr. Helena Yu at Memorial Sloan Kettering, and signed the informed consent form. Now comes 6 crazy weeks, full of doctor appointments, tests, plus a planned trip to Ohio to visit my brother and go to the cancergrace.org Targeted Therapies in Lung Cancer Patient Forum. My husband and I are back in NYC tomorrow so I can have a full battery of tests on Friday - MRI of brain, CT scans, echocardiogram, EKG, blood work, and eye examination. A link to the study is at the end of this post. It is combining Tarceva (erlotinib) and Mekinist (trametinib), a MEK inhibitor, and could be a good choice for my current unusual mutation status of having both EGFR and BRAF.

I am incredibly impressed with Dr. Yu and with MSKCC. So far every contact has been pleasant, and staff across all levels of the operation have been friendly and responsive.

I'll report back as I can, and plan to write a blog post about the conference in Ohio. It's being held at the Cleveland Clinic, so I'll get a peek at another excellent cancer center.

Anita

clinicaltrials.gov/ct2/show...

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17 Replies
JeanE41 profile image
JeanE41

My thoughts and prayers are with you. I hope your new treatment goes well for you with a minimum of side effects. Don't forget to knit. It keeps us sane during trying times. You can't do better than Sloan Kettering.

Jean

scifiknitter profile image
scifiknitterBlogger in reply to JeanE41

Jean,

I just cast on travel knitting for the trip, a pair of fingerless gloves in yarn I spun myself. You'll know I'm done for when I stop knitting. The other project I'm working on is a beaded sweater, and it is now too bulky to lug around with me.

Anita

JeanE41 profile image
JeanE41 in reply to scifiknitter

How did your socks turn out? You were working on a new pattern for your daughter.

scifiknitter profile image
scifiknitterBlogger in reply to JeanE41

They came out well, and fit my husband perfectly!

MissyD1 profile image
MissyD1

Sending you best wishes for your new treatment! Hope all goes well x

scifiknitter profile image
scifiknitterBlogger in reply to MissyD1

Thank you, Missy!

FtB_Peggy profile image
FtB_Peggy

Good luck, Anita. Thank you so much for doing the trial, and for sharing with us!!

scifiknitter profile image
scifiknitterBlogger in reply to FtB_Peggy

I'll keep the community informed. 🙂

Denzie profile image
DenzieModeratorVolunteer

This is just cool beyond words. Take care you don't wear yourself out too much. My regards to your hubby!

scifiknitter profile image
scifiknitterBlogger in reply to Denzie

We're keeping things as low stress as possible - driving only 4 hours, then taking the train to the city. There's a reasonably priced hotel in the same building as the doctor's offices, which also helps make things easy.

PegD profile image
PegD

Excited to hear how this works for you! Sending best wishes.

scifiknitter profile image
scifiknitterBlogger in reply to PegD

Thank you!

Faith17 profile image
Faith17

Dear Anita

Wishing you the very best outcome ever at MSK. I've heard It's one of the best hospital for cancer treatments. God bless you my prayers are with you🙏🌹

scifiknitter profile image
scifiknitterBlogger in reply to Faith17

Thank you!

ThePurplePlace profile image
ThePurplePlace

Wishing you the very best - safe travels !

~ Lissa

scifiknitter profile image
scifiknitterBlogger in reply to ThePurplePlace

Thank you!

midtown711 profile image
midtown711

Best Wishes to you!!!

Brian

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