Lymphoedema and me.

[Johnnycomelately]

Had primary lymphoedema diagnosed last year (scan showed 0/10 drainage vessels in lower left leg and only 1 in right.). Before being diagnosed with this complaint, I had been to see my doctor initially because although I've always been fairly active walking / golfing / badminton etc I was finding all of these activities more difficult ie; not being able to run, legs stiffening up and aching badly particularly after exercise. The compression stockings I now wear pretty much control the swelling but haven't done much to improve the mobility in my legs. Is there anyone out there whose lymphoedema has followed a similar course and if so can you offer me any tips or guidance?

[ninewells]

Have to say swimming is the only activity that doesn't pain me, bikes and row machines kill my knees. My mobility is hampered with the Compression stockings also but i won't complain as i now have my life back, unlike a few years ago when my limbs weighed so much more and it felt like i was lifting water drums around each time i lifted a leg.

If you get a chance at using a Hydro pool please try it, OMG the relief in your limbs is amazing. Good luck