Hello to Everybody!Are there any other guys on here with lower limb / torso lymphodema?

[Christo]

Mine is secondary lympho following on 5 years after cancer treatment - radiation and chemo - seems it damaged the lymph nodes - now stuck with this big problem

Give me a shout if you want to talk and share some information.

Cheers

Christo

[Blacky]

HI Christo, I am not a guy, but i do have secondary lympho in one leg following a biopsy ten years ago. At first it was not so much of a problem but is steadily getting worse, (I reckon my right leg is nearly three times bigger than the left leg) I wear full leg compression hoisery and have it bandaged once a month but still it continues to grow!!!! very frustrating and it seems there is nothing that can be done about it, although i did read an article recently about a girl who had lyposuction and is now back down to normal size, the down side is that she has to wear the hoisery 24/7 for the rest of her life....

[Christo in reply to Blacky]

Hi,

From what I know - these surgical treatments are very risky and only offer short term relief. I recently joined an excellent international network on FB - it is full of friendly people with lots of useful links and info . . .

facebook.com/groups/2824159...

Please have a look - if you need an invite let me know . . .

Cheers

Christo

[xojoeybethox]

I have it in my left leg from a car accident...looking for an active facebook group with people with lymphoedema if anyone has any info..thanks

[jinger in reply to xojoeybethox]

Hi xojoeybethox, try searching for 'Lymphoedema is part of who I am' in facebook. It's an open group and I joined over a year ago. They're a great bunch of all ages, both male and female

[neilkerr]

ive had primary lymphodema in both legs and arms for most of my life so i have adjusted to it over time...