I first met Prof Mortimer about 7 years ago. He diagnosed me with Lipoedema which was complicating my severe secondary Lymphoedema from breast cancer treatment in 2003.
The team at St George's have submitted 4 bids over 5 years to my CCG for Liposuction funding as my arm is so bad and all other treatments fail. All 4 have been turned down. Putting a bid together takes a very long time so I am grateful to the team for their patience and hard work.
I've had a couple of MRI's over recent months and Prof felt he'd like to put in a bid himself for me. His first. I'm pleased to report that funding has been approved.
I can't quite take it in after 6 years of waiting I thought it would never happen.
I know it's a long hard road but it's so good to have a way forward identified now.
I feel very sad that my husband died before he heard the good news. He was my staunchest ally and the only person who really understood how my swelling impacted my life and his too.
It's a hard life on your own so I'm not entirely sure how I'll cope after the surgery and donning and wearing hose 24/7 for the rest of my life but it has to be better than what I'm enduring now.
I am indebted to the team at St George's for their dedication and hard work.They have never treated me with anything less than compassion, kindness and offered me support all the years I've been going.
It’s a centre of excellence of course.
I'll let you know when "my plan" is in place.
Aprille, so happy for you. While you may find it difficult initially, I promise you it will be life changing for the better. I had both of my legs done one and 3 years ago. I'm extremely happy not to have to deal with lugging around the extra weight from fluids. Best of luck to you.
I will be here rooting for you. Please keep us posted. Regards, Sharon
Thanks so much for the best kind of encouragement, from someone who has had the procedure x 2!