I think it's a shame treatment is a lottery in UK, especially when you suffer pain and discomfort. This government should be ashamed that only people who can afford treatment receive relief and treatment. It should be on the NHS... it is a national disgrace. I still haven't been able to get a referral to lymphedema/ vascular consultant. I'm still under a Vascular consultant who will not refer me.. he wants to remove the veins in my leg. I would like a reason why I have it and what stage I have it. So I can provide evidence so I can hopefully receive financial help to see a Lymphodema therapist in my local town. It makes such a difference but not everyone can afford £65 for each treatment. You really need 2 sessions each week. So you suffer pain and swelling in silence because you don't know what else to do. You wear compression garments and exercise as much as you can and work fulltime. I'm ashamed that this government makes us suffer pain... because we can't afford treatment. I don't know if it will work but would it help if we start lobbying our local Mps? So wherever you live and whatever your income we are all entitled to see a Lymphodema Consultant and receive relevant treatment to relieve pain. Over the weekend I'm going to lobby Anne Milton my local MP - if we all lobbied our MP.. tweeted our concerns, follow on Facebook maybe just maybe we will all receive treatment quickly to prevent the disease moving to the next stage.. fingers crossed 🍀let's hope so..