How do I get effective support.
I saw a lymphoedaema nurse and a sleeve was prescribed, swelling 40%. Appointment 3 months later, swelling now 45%. Prescribed a flat knit sleeve. This has never been comfortable.
End August request by doctor for LDM. Message telexed to hospital and lost. Wait 14 weeks. So when I heard nothing contacted hospital and they told me message forwarded and lost, back to doctor, telex sent again, in November. Another 14 week wait. Have so far paid for 8 sessions of MLD. Saw specialist nurse as the physio thought the sleeve was wrong. Prescription telexed to doctor end November, sent to chemist 2 weeks later. Now lost in transit. Also appointment with specialist nurse for March cancelled until June as I asked to see her. Swelling reducing with MLD but it is costing more than I can afford. Reduction in swelling about 10%, so it is effective, but slow.
Is there anywhere I can get help? Member of Benenden Hospital but support refused.