Yesterday we saw a vascular surgeon who has diagnosed secondary lymphoedema. She has had an increasingly swollen foot over the last 5 months. We saw GP's, had blood tests, paediatrician, more blood tests, X-rays, MRI, saw orthopod, then Vascular surgeon. He says secondary as she had cellulitis at 8 months which may have damaged the lymphatic vessels.
I know nothing about it and am frantically reading everything I can about it. we are awaiting referrals for compression something's, too small for stockings, and manual lymphatic drainage training. Not looking forward to massaging every night until she's old enough to do it herself.
Will she be able to wear heels and short dresses when she goes out??? Lots of silly questions in my head.
All advice welcome, thanks in advance