Please can you advise where the local referral centres are in Bristol please. I am going to GP tomorrow and am going to tell him where I want to be referred to. I have been to hospital today for a different reason and the nurse was doing an ECG on me, she would not put the electrodes on my legs,, saying it was the worse case of lymphedema she had ever seen and was worried that the sticky pads would tear my skin. So no messing around now, I need proper treatment. Many thanks.
Tina
Macmillan Lymphoedema Service, Portishead and Royal United Hospital, Bath - you can find the contact details here -
thebls.com/directory/index.... However, your GP should be able find the nearest NHS Lymphoedema Clinic via the NHS Intranet - usually available via the PC screen on his desk.
Thank you Lynora, I rang the LSN office this morning as they gave me the same info as you. I have told my GP this and he has sent an Email to the secretary to see if there is one in Bristol. Why don't they believe you what you tell them! I said that there may be ones in Bristol but that is for secondary lymphedema (I must admit I was quite impressed with my knowledge this morning, I think the GP even raised an eyebrow and gave a slight nod of approval). So there you have it. That is the situation for me at the present time.
Oh, he did add, but who is going to wrap your legs? For pity sake! I have given information to the GP and still more questions.
Totally cheesed off with it all.
That link does not work I am sorry to say?
Tina
The link is to the BLS website - have a look at the Directory page on thebls.com
hi harpy 1
i'm in brizzle too! the lymphoedema service covering bristol, s glos & n somerset is funded by macmillan but sees people with primary & secondary, they have clinics in loads of the gp services
their base is in portishead - tel 01275 547 573, haven't got the address to hand but i think it's the marina health centre
their main base in bristol is cossham hospital but, like i say, they do clinics here there & everywhere & will either book you in to the one nearest you or, if there's an appt available sooner somewhere else & you're happy to travel a bit then they'll do that
manager's called lorraine - sorry, can't remember her family name at the moment
& they have a team of lovely nurses
there's also a support group that meets 4 times a year in filton - sites.google.com/site/brist...
& here you go, link to the team too northsomerset-cic.co.uk/lis...
hope that's useful & you have a gert lush time meeting them!
Hi Norberte, 'ark at ee' with your gert lush ! lol Thank you, I did not realise that the base in Portishead would re-direct me to somewhere in Bristol. You are quite correct, it is the Marina Health Centre. I got the details from the BSL website that Lynora supplied. Well, perhaps I shall get to meet you at one of these meetings?
sounds like a plan!
yes, do - they're v friendly & don't forget to leave a bit of room for the tea & cakes!
i can't get there on tues, but i still remember turning into the car park the first time i went, thinking 'is this the right place?' & saw people with compression garb on turfing out of other cars, which was a bit of a clue!
apart from the lsn conference, it was the first time i'd seen so many people with sleeves, gloves, stockings & various other bits covered in nylon
hope you enjoy it, don't forget that partners / friends are v welcome if you'd prefer not to go on your own (although i went on my own & it was fine)
YEAAAAAAAAAAAAAAAAAAAAAAAAAAAH! After a decade I have got a referral appointment at The Marina HC. Sept.19th whooopwhooop cant wait.!
Great news Harpy1 lets hope you get the help and support you need
Hi Harpy1
Could i point out to you BodybrilliantLtd.com who are the retailers of Compression therapy Equipment in the UK and you could discuss further with Naomi Northen-Ellis (On this Network) who is also has Primary lymphoedema but is not a sufferer.
Regards Ade
so what of these things are down to the lymphodema?
lymphoedema in the stomach area
Need some advice 
