has anyone had the drug to remove 30% of body fluid, ?

[cathyleigh]

usually you go into hospital for a while as can cause problems to liver/kidneys.

does anyone know the name of this drug, or had this treatment- what was the outcome, did you lose 30% water, and did it stay off?

what exactly happens?

thanks

[Lynora]

This sounds scary??? I would be interested too!

[suzie_danger_girl]

I don't know what the drug is but its not water we have on us, its lymph fluid. My understanding is we should avoid 'water loss' drugs like the plague as they will make you really ill. I imagine they would accelerate hardening or fibrosis of thr material, I don't think it'd do your kidneys any favors. You should in fact have as much water as you can is my rule, when you get dehydrated your system all blocks up and things get much worse very quickly. This is why you are told to drink water after mld. I personally have milk thistle to boost grtting toxins out, and lots of water.

If there is a product which gets lymph fluid out not water im interested but be very careful no one just treats it like normal fluid.

[cathyleigh]

thank you for this, I was informed at my consultation in St Georges that they would take me in for three weeks in to HDU, get a team around e, remove fluid up to 30%, do mld, genetic testing, for my full body lipodema, with secondary lymphodema in both legs and ankles and stomach. then to right heart catheter me, and do bariatric surgery by passing my stomach completely, to get the body mass down.

I wanted to get the lymph fluid (thank you) down by 30% as then I could be more mobile, receive mld, continue with compression stockings, and this would help my arthritis and metabolic X too.

[mldmassage]

Are they not taking you in for MLD and bandaging for 3 weeks combining with the genetic testing? I assume that you are under Prof Mortimer for this, if you are unsure of what your treatment is then you should ask for it to be clarified.

[norberte]

blimey cathy, sounds v drastic - are you ok with it?

i've never heard of this treatment plan either - but with lymphoedema, the one thing i have learned is that there's always another surprise round the corner - & from your description there are quite a few risks involved

d'you know how many times they've done it before? is this slightly experimental, or well researched & understood? &, as you say, your poor kidneys will be in for a shock!

could they arrange for you to talk with someone who's had it?

i suppose they're the kind of questions i'd be asking - they've told you there are risks, but how many % of people have complications?

&, as you say, does the lymph stay gone? i can't imagine how i'd feel if i went thru all that & then the lymph played up again

good luck with it if you decide to go through with it - let us know how you get on