Hi, this is my first post. My little girl was hospitalised with a hot, swollen ankle at 13 months old, which was treated as septic arthritis and surgically washed out.
She was 18 months old before JIA, oligoarthritis, was diagnosed and she began steroids, followed by methotrexate at about 21 months old.
She will be 3 in February 2017 and is still on methotrexate, given to her weekly via injection by Community nurses.
About 4 or 5 months into having the methotrexate, she started to get sick on it, so began taking Ondansetron as an anti-sickness medication.
She is probably more phobic about taking the anti-sickness meds than having her injection done and it's a constant source of stress every weekend, knowing that we have to either force it down her or trick her into taking it in juice etc.
The consultant is suggesting that she moves from methotrexate to etanercept in the new year. We understand that this will be 2 x weekly injections as opposed to the methotrexate which is 1 x weekly.
Does anyone have experience of using etanercept in a toddler/child and have anything to say about side effects / sickness / it in general and how it compares to methotrexate?
I'd be really grateful to make contact with anyone in a similar situation, a young child with JIA.