Self injecting romoplostin: Just... - ITP Support Assoc...

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Self injecting romoplostin

healthissue profile image
7 Replies

Just wondering just been told can self inject romoplstin at home. does anyone know is it the same method as they do in hospital where you measure it all in hospital.ir is the home one easier. Patient friendly!!

Thanks Becky

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healthissue profile image
healthissue
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7 Replies

Hello, the home stuff that I get is a peculiar set up of bits with a little tube of water ready measured and a connector to go on the drug vial that the water tube fits to. You screw a plunger into the water tube and push the water in. Screw on a syringe and draw up the dose and then remove the syringe and push on the needle. It all comes in a huge box which I take apart as soon as I get home and put the drug vial in the fridge and the rest I keep in a plastic food box. It's all very easy. I get 8 weeks at a time and there's no way I could keep 8 boxes in the fridge.

Have a look here medicines.org.uk/emc/medici... on the pdf it has little pictures of how it's done.

Tom_P profile image
Tom_P in reply to

I have the bottom-half of the fridge reserved for this stuff, I know how much space it can take up. Unpackaging the contents might save a lot of space but as stated in the linked pdf, the packaging is there protect from light so I'm not sure if this practice should be endorsed.

in reply toTom_P

Nah, there's no light in a fridge for the drug and the rest does not need to be kept in the dark. When I was on the trial for this stuff we were just given the vial of drug for the fridge and a bag of bits. I just continued in the same way.

Oh, when you open the pdf file the pictures are right at the bottom past all the blurb.

healthissue profile image
healthissue in reply to

Also thank you for your reply in November information regarding drew provens talk

healthissue profile image
healthissue

Thank you so much. i did say to my husband we will have to buy a fridge just for my injections. makes sence you have taken them out of the box.i have 2 young childeren so may have to get a box i can lock. thank you so much for your help. do you find it easy

in reply tohealthissue

Yes, it's very easy. Mixing and drawing up the drug is easy and then I inject into the stomach area which I find painless.

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